I have the conflict between concept and cynic playing out in my head. It/s an empty daydream at the moment that inspires this contrast “♪ and probably will be for life♫”.
In recent months, I’ve thought to start a fundraising campaign tied to the rare genetic disease I suffer from, Neurofibromatosis Type 2, you can find reads about my plight with that here on Johnny Fonts. I tried to fundraise in 2016 at Raw Charge and had it fail with no network support from fellow hockey blogs or SB Nation. Or many readers for that matter. “Deke The Deuce” didn’, it died.
That was straight finance. My passing thought this time is purchase-of-music through a charity album.
A charity album of songs provided by independent musical artists the mainstream doesn’t know for a widely unknown disease? Oh, that has #FAIL all over it!!… or does it?
It’s just a thought. I have no clue on costs, artists who would agree to partcipate (tough I know performers I’d approach about this), or even the ideal medical institution researching NF2 specifically. I just know it’s a path creative and challenging. Especially for someone in the state I’m in.
I want to save others and fight the suffering, that’s grounds to seek charity… Can I achieve via rythem, harmony and goodwill? One can dream…
Consistant music in lyrics and genre, album art, costs, living with that black hole… The promo challenge to sell any music to make any mone… The list of challenges is intimidating, as is the doubts…
So is life with NF2.
I wrote these words 25+ years ago and they seem fitting here:
[…] And so, the damned strides on“Destitute”, circa Oct. 1996
Fear in his eye, courage in his heart […]
It’s a daydream, and I may very well try it…