Regarding surgery and the menace that is NF2

There’s another aspect to talk about regarding life and where things for me stand at three weeks after I had an emergency brain operation which I talked about last week. What I focused on squarely during that write-up was post-op and the world I was involved in as I tried to grasp reality again. Just for the sake of throwing out the key words: Delusions, mental lapses, reincarnation.

Yeah, but what about before all that, what about pre-op?

While I have no recollection of Tuesday, December 6th and the events that led to surgery, I can remember life leading up to this incident just fine. And in the days before December 6th, it did come up where I thought of grander concepts and my medical condition in general. And I didn’t want anything to do with a process of medicine.

Let’s take a step back here and start with my condition: A rare neurological disorder called Neurofibromatosis Type 2. I’m deaf by way of it. I’ve had a few operations to remove tumors in my back and head. I know all the fun and games of the hospital (…which further makes me pissed off at the “ICU” I dealt with earlier in December, which was nothing of the sort, but I digress). At 37 years old, the concept of NF2 treatment is what pre-op was about. My thoughts leading to Tuesday, December 6th were a shrug and a rude hand gesture or two toward NF2. While the menace was and is part of my life, I wanted to live my life firstly and forget about the medical condition. I wanted to be and not get lost in MRIs or neurological clinic visits and such.  It’s those aspects that dominated thoughts of pre-op: The fact I was overdue to have a scan or see a neurologist just for shits and giggles.

Being is what life is about; most of us toil through what our world offers. That’s what I wanted; not to get distracted by what could happen if I don’t, but to foil away against what was happening with life. NF2 can go fuck itself, and if it was going to kill me then oh well, too bad, so sad.

Yeah, and then we move to today and where I am at the moment and I’m ready for war. Like I said in the write-up the other day, I was dead post-op. Knowing that (or experiencing that) riles me up inside.  I had to experience this shit and you’re still a genetic menace in my body? Fuck you.  Fuck you, dearly [Editor note: f-bombs are fun sometimes and fitting]

I’ll have an MRI in the next six months, I’m sure, and will likely see one neurologist or another just to have a social sphere and good times… All because tomorrow is dictated by what the disease brings to the table. I’ll still foil and toil away at life as it matters, but this genetic condition ain’t playing well with me and I sure as shit don’t want to be nice in return.

 

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